Last Thursday we went to see "Dr. Kup", Maya's heart surgeon. It was nice to finally sit down and talk with him about the whole process from start to finish. He is an amazing surgeon and we feel truly blessed that he is Maya's doctor. There's just something to be said for a person who has held your child's heart in his hands... twice.
He seemed really happy with Maya's progress (from the stroke) 3 weeks out. He said that he went back and looked at the logs for the period of time that she was on bypass and saw no dip in the oxygenation levels. They use a very precise brain monitoring system, and he said that it is common to have dips in any case, but there was not even a small one in hers. So still no answer on what or when the stroke occurred. Maybe we will get some answers when we finally get to see her MRI on November 10th. It is all in the past and nothing can be done about it, but if she needs a future surgery-- I don't even want to think about that.
He said she looked great and told her he would miss her... as much as I like him, I hope I never have to see him again! We will continue monthly check-ups with our cardiologist and he will be the one to monitor her progress from her on out.
We had PT on Friday and Maya had not had a good night. But when Alicia came she was all smiles- Go figure! Here she is doing some exercises in her Bebe Gear that my friend Katherine made her. Isn't it adorable?
I'm so happy that we have hooked up because she LOVES to sew on knits and I totally don't, so it's nice to trade. One of her daughters, Jacqueline, was a model for the last shoot. She's so cute!
If you like Bebe gear, check her out on facebook. She posts new pictures everyday of her latest and greatest creations!
We have an OT evaluation tomorrow and PT after that, so Maya will have a full day :)
"Be joyful always; pray continually; give thanks in all circumstances,
for this is God's will for you in Christ Jesus."
1 Thessalonians 5:16-18
1 week ago